Albany Days & readi program

Albany Days is a unique, annual opportunity organized by NYSBDC for bleeding disorder community members across New York State to advocate for issues important to the bleeding disorder and chronic care communities.

Participants have the opportunity to meet face-to-face with lawmakers and staff who shape the state’s healthcare policy, become more informed on critical issues that affect access to quality care and learn effective, grassroots advocacy techniques. Prior to their legislative meetings, attendees receive advocacy training to become more familiar when speaking about public health issues. Throughout the event, attendees learn more about the legislative process and meet other community members navigating through the same health care issues.

Keep reading to learn more about our two upcoming Albany Day events!

*You must live in New York State and either have a bleeding disorder, be a carrier, or be a family member of someone with a bleeding disorder in order to attend. Please reach out to your chapter to register to attend.

Join the New York State Bleeding Disorders Coalition for Albany Days as advocates from all over New York State mobilize and advocate in support of several key bills. Individuals and families are encouraged to participate in this legislative day.

During a pre-meeting Advocacy Skills & Knowledge (ASK) training, attendees become more comfortable with the issues and receive various training tools and resources enabling them to meet their legislators (or representatives) to express their views.

Participants will have the opportunity to meet face-to-face with lawmakers and staff who shape statewide healthcare policy, become more informed on critical issues that affect continued access to quality care and learn effective, grassroots advocacy techniques. This program offers a unique experience for members and families of the bleeding disorders community to learn more about the legislative process, meet other families navigating through the same health care issues and the opportunity to be better, together.

*If you register for the R.E.A.D.i. Program, you do not need to register for Albany Days as well.

The Regional Education Advocacy Development Initiative (READI) Program is a free leadership program that teaches teens and their parents, as well as community members new to Albany Days, the ins and outs of advocacy and gives participants the opportunity to use these skills at the state level.

Attendees will learn how to tell their story and will have the opportunity to utilize their advocacy skills when they speak to legislators at Albany Days. The program will be filled with interactive games and sessions.

This program is for teens ages 13 - 18 and their parents, as well as adult community members looking for an introduction to legislative advocacy.